{"id":175,"date":"2009-05-29T18:47:20","date_gmt":"2009-05-29T16:47:20","guid":{"rendered":"https:\/\/www.ondinefrance.org\/?page_id=175"},"modified":"2020-09-03T18:40:06","modified_gmt":"2020-09-03T16:40:06","slug":"mission-du-centre-de-reference-du-syndrome-dondine","status":"publish","type":"page","link":"https:\/\/www.ondinefrance.org\/index.php\/mission-du-centre-de-reference-du-syndrome-dondine\/","title":{"rendered":"Mission du centre de r\u00e9f\u00e9rence du syndrome d&rsquo;Ondine"},"content":{"rendered":"<p><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Expertise:<\/strong><\/p>\n<ul>\n<li>\u00c9laborer les Protocoles Nationaux de Diagnostic et de Soins du syndrome d\u2019Ondine,<\/li>\n<li>D\u00e9velopper les outils pour assurer la continuit\u00e9 de la prise en charge,<\/li>\n<li>D\u00e9velopper des outils permettant d\u2019\u00e9valuer les pratiques de la prise en charge,<\/li>\n<li>Appliquer les dispositifs diagnostiques et th\u00e9rapeutiques innovants,<\/li>\n<li>Diffuser les bonnes pratiques de diagnostic et de soins.<\/li>\n<\/ul>\n<p><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Recours: accueillir les patients et am\u00e9liorer la qualit\u00e9 de leur prise en charge<\/strong><\/p>\n<ul>\n<li>Am\u00e9liorer l\u2019encadrement de l\u2019annonce du diagnostic et du suivi du syndrome d\u2019Ondine,<\/li>\n<li>Am\u00e9liorer l\u2019organisation de la prise en charge d\u2019urgence au niveau des r\u00e9gions,<\/li>\n<li>Formaliser la fili\u00e8re de soins avec les soci\u00e9t\u00e9s savantes ou expertes en France,<\/li>\n<li>Avis, conseils pour la population en France et \u00e0 l\u2019\u00e9tranger,<\/li>\n<li>Favoriser les \u00e9changes professionnels, techniques et administratifs entre les m\u00e9decins et le Centre de R\u00e9f\u00e9rence du Syndrome d\u2019Ondine.<\/li>\n<\/ul>\n<p><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Recherche:<\/strong><\/p>\n<ul>\n<li>Renforcer la recherche sur le syndrome d\u2019Ondine en France,<\/li>\n<li>Promouvoir et coordonner les travaux de recherche,<\/li>\n<li>D\u00e9terminer les recommandations de prise en charge m\u00e9dicale du syndrome d\u2019Ondine,<\/li>\n<li>D\u00e9velopper des collaborations internationales,<\/li>\n<li>Identifier les centres ressources en Europe,<\/li>\n<li>Participer \u00e0 la surveillance \u00e9pid\u00e9miologique en France et au niveau international.<\/li>\n<\/ul>\n<p><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Animation du r\u00e9seau m\u00e9dico-social:<\/strong><\/p>\n<ul>\n<li>Am\u00e9liorer la prise en charge m\u00e9dico-sociale:<br \/>\n\u2013 Am\u00e9liorer l\u2019accompagnement des familles et des soignants,<br \/>\n\u2013 Am\u00e9liorer les moyens de communication,<br \/>\n\u2013 Mettre \u00e0 la disposition des usagers du Centre de R\u00e9f\u00e9rence Ondine un site Web d\u00e9di\u00e9.<\/li>\n<li>Informer et former les professionnels de sant\u00e9, les malades et leurs familles.<\/li>\n<li>Les m\u00e9decins du Centre de R\u00e9f\u00e9rence du Syndrome d\u2019Ondine participent au Dipl\u00f4me inter-universitaire : DIU \u00abLe sommeil et sa pathologie\u00bb<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Expertise: \u00c9laborer les Protocoles Nationaux de Diagnostic et de Soins du syndrome d\u2019Ondine, D\u00e9velopper les outils pour assurer la continuit\u00e9 de la prise en charge, D\u00e9velopper des outils permettant d\u2019\u00e9valuer les pratiques de la prise en charge, Appliquer les dispositifs diagnostiques et th\u00e9rapeutiques innovants, Diffuser les bonnes pratiques de diagnostic et de soins. Recours: accueillir [&hellip;]<br \/><a href=\"https:\/\/www.ondinefrance.org\/index.php\/mission-du-centre-de-reference-du-syndrome-dondine\/\" class=\"more-link\" >Continue reading&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-175","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/175","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/comments?post=175"}],"version-history":[{"count":5,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/175\/revisions"}],"predecessor-version":[{"id":508,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/175\/revisions\/508"}],"wp:attachment":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/media?parent=175"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}