{"id":183,"date":"2024-08-21T16:45:17","date_gmt":"2024-08-21T14:45:17","guid":{"rendered":"https:\/\/www.ondinefrance.org\/?page_id=183"},"modified":"2025-10-15T15:34:40","modified_gmt":"2025-10-15T13:34:40","slug":"qui-sommes-nous","status":"publish","type":"page","link":"https:\/\/www.ondinefrance.org\/","title":{"rendered":"Qui sommes-nous?"},"content":{"rendered":"<div align=\"right\">\n<h2 style=\"text-align: left;\"><span style=\"color: #99cc00;\"><strong>Le site du Centre de R\u00e9f\u00e9rence du Syndrome d&rsquo;Ondine<\/strong><\/span><\/h2>\n<p style=\"text-align: left;\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Le site est destin\u00e9 aux patients Ondine, aux \u00e9quipes soignantes, aux autorit\u00e9s administratives et au grand public.<\/p>\n<p style=\"text-align: left;\"><strong>Nos missions:<\/strong><\/p>\n<p style=\"text-align: left;\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Informer sur la maladie&#8230;<\/p>\n<ul>\n<li style=\"text-align: left;\">Le <a href=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/Syndrome_d_Ondine_PNDS.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">PNDS du syndrome d&rsquo;Ondine est disponible en t\u00e9l\u00e9chargement<\/a> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-319\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/pdf.gif\" alt=\"\" width=\"20\" height=\"17\" \/><\/li>\n<li style=\"text-align: left;\">Le <a href=\"https:\/\/www.ondinefrance.org\/index.php\/le-livret-euchs\/\">Livret d&rsquo;information (EUCHS Patient Booklet)<\/a> est destin\u00e9 aux patients et \u00e0 tout public&#8230;<\/li>\n<li style=\"text-align: left;\">La <a href=\"https:\/\/www.ondinefrance.org\/index.php\/ats-statement-on-cchs-2010\/\">d\u00e9claration de politique clinique (ATS Statement on CCHS 2010)<\/a> est destin\u00e9e aux professionnels de sant\u00e9&#8230;<\/li>\n<li style=\"text-align: left;\">La <a href=\"https:\/\/www.ondinefrance.org\/index.php\/prise-en-charge-sociale\/\">prise en charge sociale&#8230;<\/a><\/li>\n<\/ul>\n<p style=\"text-align: left;\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> \u00c9changer et diffuser les id\u00e9es, les connaissances, les solutions&#8230;<\/p>\n<ul>\n<li style=\"text-align: left;\">La 5\u00e8me Conf\u00e9rence Internationale sur le syndrome d&rsquo;Ondine, en Juin 2018, \u00e0 Saint-Louis, MI, aux USA&#8230;<\/li>\n<li style=\"text-align: left;\">La 4\u00e8me Conf\u00e9rence Internationale sur l&rsquo;hypoventilation centrale, 13-15 Avril 2012, \u00e0 Varsovie, en Pologne&#8230;<\/li>\n<li style=\"text-align: left;\">Les Rencontres Patients &#8211; Soignants.<\/li>\n<\/ul>\n<hr \/>\n<p style=\"text-align: left;\"><span style=\"color: #99cc00;\"><strong>FOR INTERNATIONAL VISITORS<\/strong><\/span><\/p>\n<p style=\"text-align: left;\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/>\u00a0The <a href=\"https:\/\/www.ondinefrance.org\/index.php\/le-livret-euchs\/\">EUCHS Patient Booklet<\/a> is available in many languages &#8211; free download.<br \/>\n<img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-316\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/puce5.jpeg\" alt=\"\" width=\"10\" height=\"11\" \/> Meet us at the <a href=\"http:\/\/www.ichsnetwork.eu\/\" target=\"_blank\" rel=\"noopener noreferrer\">EUCHS website<\/a> (European Central Hypoventilation Syndrome).<\/p>\n<hr \/>\n<p>Centre de R\u00e9f\u00e9rence du Syndrome d&rsquo;Ondine<br \/>\nH\u00f4pital Robert Debr\u00e9 &#8211; 48 Boulevard S\u00e9rurier &#8211; 75019 Paris, France<br \/>\n<span style=\"color: #99cc00;\">T\u00e9l\u00e9phone : +33 (0)1 40 03 47 51<\/span><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Le site du Centre de R\u00e9f\u00e9rence du Syndrome d&rsquo;Ondine Le site est destin\u00e9 aux patients Ondine, aux \u00e9quipes soignantes, aux autorit\u00e9s administratives et au grand public. Nos missions: Informer sur la maladie&#8230; Le PNDS du syndrome d&rsquo;Ondine est disponible en t\u00e9l\u00e9chargement Le Livret d&rsquo;information (EUCHS Patient Booklet) est destin\u00e9 aux patients et \u00e0 tout public&#8230; [&hellip;]<br \/><a href=\"https:\/\/www.ondinefrance.org\/\" class=\"more-link\" >Continue reading&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-183","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/183","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/comments?post=183"}],"version-history":[{"count":9,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/183\/revisions"}],"predecessor-version":[{"id":517,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/183\/revisions\/517"}],"wp:attachment":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/media?parent=183"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}