{"id":248,"date":"2009-06-10T19:02:25","date_gmt":"2009-06-10T17:02:25","guid":{"rendered":"https:\/\/www.ondinefrance.org\/?page_id=248"},"modified":"2020-09-03T21:15:19","modified_gmt":"2020-09-03T19:15:19","slug":"le-reseau-des-familles","status":"publish","type":"page","link":"https:\/\/www.ondinefrance.org\/index.php\/le-reseau-des-familles\/","title":{"rendered":"Le r\u00e9seau des familles"},"content":{"rendered":"<p><span style=\"color: #99cc00;\"><strong>A travers le monde, les familles des patients Ondine se sont regroup\u00e9es en associations depuis de longues ann\u00e9es.<\/strong><\/span><\/p>\n<p><b><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-35\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/strzalka.png\" alt=\"\" width=\"10\" height=\"11\" \/> Elles \u0153uvrent pour:<\/b><\/p>\n<ul>\n<li>am\u00e9liorer les moyens de diagnostic de la maladie,<\/li>\n<li>am\u00e9liorer la prise en charge des patients,<\/li>\n<li>am\u00e9liorer les conditions de vie des patients et des familles,<\/li>\n<li>stimuler la recherche clinique et fondamentale.<\/li>\n<\/ul>\n<p><strong style=\"color: #000000;\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-35\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/strzalka.png\" alt=\"\" width=\"10\" height=\"11\" \/> <\/strong>Les associations des familles de patients Ondine en Europe:<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-19\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/logo_afsondine.gif\" alt=\"\" width=\"200\" height=\"43\" \/><\/p>\n<p><a href=\"https:\/\/www.afsondine.org\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Association Fran\u00e7aise du Syndrome d&rsquo;Ondine<\/strong><\/a> (site en fran\u00e7ais et en anglais).<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-314\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/logo_asso_al-300x76.png\" alt=\"\" width=\"200\" height=\"51\" srcset=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/logo_asso_al-300x76.png 300w, https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/logo_asso_al.png 613w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/><a href=\"https:\/\/undine-syndrom.de\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Undine-Syndrom<\/strong><\/a><br \/>\nAssociation allemande du syndrome d&rsquo;Ondine (site en allemand).<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-313\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/logo_asso_it.gif\" alt=\"\" width=\"200\" height=\"132\" \/><a href=\"https:\/\/www.sindromediondine.it\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Sindrome di Ondine<\/strong><\/a><br \/>\nAssociazione Italiana per la Sindrome da Ipoventilazione Centrale Congenital (AISICC).<br \/>\nAssociation italienne du Syndrome d&rsquo;Ondine (site en italien).<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<hr \/>\n<p><strong style=\"color: #000000;\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-35\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/strzalka.png\" alt=\"\" width=\"10\" height=\"11\" \/> <\/strong>Les associations des familles de patients Ondine aux Etats Unis<\/strong><strong>:<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-9\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/cchstitle.gif\" alt=\"\" width=\"200\" height=\"30\" \/> <a href=\"https:\/\/www.cchsnetwork.org\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>CCHS Family Network<\/strong><\/a><br \/>\nAssociation nord-am\u00e9ricaine du syndrome d&rsquo;Ondine (site en anglais).<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-312\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/logo_site_espagnol-300x55.gif\" alt=\"\" width=\"200\" height=\"37\" \/><strong>CCHS Family Network<\/strong><br \/>\nAssociation nord-am\u00e9ricaine du syndrome d&rsquo;Ondine (site en espagnol).<\/p>\n<hr \/>\n<p><strong style=\"color: #000000;\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-35\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/strzalka.png\" alt=\"\" width=\"10\" height=\"11\" \/> <\/strong>Les associations des familles de patients Ondine en Asie<\/strong><strong>:<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-320\" src=\"https:\/\/www.ondinefrance.org\/wp-content\/uploads\/2020\/08\/cchsjap.png\" alt=\"\" width=\"200\" height=\"105\" \/><strong>Japanese CCHS Network<\/strong><br \/>\nAssociation japonaise du syndrome d&rsquo;Ondine (site en japonais).<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>A travers le monde, les familles des patients Ondine se sont regroup\u00e9es en associations depuis de longues ann\u00e9es. Elles \u0153uvrent pour: am\u00e9liorer les moyens de diagnostic de la maladie, am\u00e9liorer la prise en charge des patients, am\u00e9liorer les conditions de vie des patients et des familles, stimuler la recherche clinique et fondamentale. Les associations des [&hellip;]<br \/><a href=\"https:\/\/www.ondinefrance.org\/index.php\/le-reseau-des-familles\/\" class=\"more-link\" >Continue reading&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-248","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/248","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/comments?post=248"}],"version-history":[{"count":12,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/248\/revisions"}],"predecessor-version":[{"id":520,"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/pages\/248\/revisions\/520"}],"wp:attachment":[{"href":"https:\/\/www.ondinefrance.org\/index.php\/wp-json\/wp\/v2\/media?parent=248"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}